OSTOMY ASSOCIATION OF NEW YORK / 212-864-1968

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participate, lend your voice to help others

participate, lend your voice to help others

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ostomy/diversion support grps/LECTURES (in-person & virtuaL)

NEW YORK CITY

BROOKLYN OSTOMY SUPPORT GROUP

Meeting location:

Maimonides Medical Center, 4802 Tenth Ave, Brooklyn, NY 11219

Conference Room 2C, 2nd Floor,

Administration Building


Our meetings are free and open to the public, no RSVP is required. Individuals who want to attend and/or have questions, please contact the Wound Ostomy Nursing Specialist Team at 718-283-7954. 


WOCN team: Karine Arzoumanov; Monica Cabrera, Anjelika Kuvaldina and Sau Man 'Christine' Pang, MSN, RN, CWOCN, Wound Ostomy Continence Nursing Team Coordinator


We meet on the last Wednesday of the

month in April, May, June, September, October, and November. 

  

MEMORIAL SLOAN KETTERING CANCER CENTER  /  SELECTED SUPPORT & EDUCATION RESOURCES

MSKCC offers a variety of seminars, support group meetings, workshops and other programs focusing on living beyond cancer. Participants must have had a diagnosis of cancer. Below are some selected offerings that may be of particular interest to the Ostomy Association of New York meeting attendees and visitors to the OANY website. To view other offerings, visit: https://www.mskcc.org/experience/living-byond-cancer/upcomingprograms. Requirements for participation vary; some programs may be open only to MSKCC patients. To participate in a program, it is necessary to register. Please call 646-888-8106 or e-mail RLAC@mskcc.org. If new to support groups, an assessment is required prior to registration. Each date requires a separate registration. Programs may change or are subject to be cancelled.


BLADDER CANCER SUPPORT (In-Person)

This program is for people who have been treated for cancer. No observers, please, without prior approval. With Linda Mathew, LCSW, Vashti Livingston, CWOCN. Assessment and/or registration required.    (See above)

Date/Time/Location/Room

Jan 9 / 12:00–1:30 PM 417 E 68th St. ZRC 136 

Feb 13, Mar 12, Apr 9, May 14 / 12:00–1:30 PM 430 E 67th Street RRL 103

Jun 11, Jul 9, Aug 13 / 12:00–1:30 PM 430 E 67th Street RRL 103 

Sep 10 / 12:00–1:30 PM 430 E 67th St. RRL B20

Oct 8, Nov 12, Dec 10 / 12:00–1:30 PM 430 E 67th Street RRL 103


BLADDER CANCER SUPPORT (Online)

This live online support and education group is for individuals undergoing treatment for bladder cancer. The group is open to MSK and non-MSK patients; Discussions led by social worker and a nurse.

Day/Date/Time - Thursdays / Jan 23, Feb 27, Mar 26, Apr 23, May 28, Jun 25 / 4:00-5:00 PM

Registration is required. To register/learn more, contact virtualprograms@mskcc.org 


OSTOMY SUPPORT GROUP FOR PATIENTS WITH COLORECTAL CANCER (Online)

This live online support & education group is for people undergoing treatment for colorectal cancer with an ostomy. Group is held every other month on the 3rd Thursday of the month. Open to everyone. Led by social worker and a nurse.

Date/Time - Jan 16, Mar 19, May 21 / 4:00–5:00 PM

Registration is required. To register/learn more, please contact: virtualprograms@mskcc.org 


COLORECTAL CANCER SUPPORT GROUP (Virtual)

Support & discussion for men and women who have completed treatment for colorectal cancer. Topics include diet & nutrition, adjusting to physical changes and managing anxiety. Program for people who have had cancer. No observers without prior approval.

Leah Moroge, LCSW, Zana Correa, NP, BC

Day/Date - Tuesdays / Feb 18, Apr 21, Jun 16, Aug 18, Oct 20, Dec 15

Time - 1:00-2:30 PM 

Registration required. To register go to: www.mskcc.org/vp


LIFE AFTER CANCER (Online Support  Group)

Kimarie Knowles, LCSW, Kristie Redfield, LCSW and Leah Moroge, LCSW,

Department of Social Work

The end of treatment can bring about unexpected feelings and reactions such as a sense of loss, a shifting of priorities and worries about the future. We will address these and other related feelings and consider strategies for managing during this time.

Day/Date/Time - Tuesdays / April 7, Oct 6 

Time - 12:30-1:30 PM

Registration Required: To register, go to: www.mskcc.org/vp

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MSKCC cont'd

MEN AND CANCER SUPPORT GROUP (Online) 

Marie Knowles, LCSW and Chris Anrig, LCSW, Department of Social Work

For men who are finished with treatment. The group will address common areas of concern including building stamina, body image changes, sexuality, employment, communication with friends and family, preoccupation with health and fear of recurrence. Must have been treated at MSKCC 

Day/Date - Wednesdays / Jan 15, Apr 15, Jul 15, Oct 21

Time - 2:30-3:30 PM

Registration required: To register, go to: www.mskcc.or/vp

  

LIFE AFTER CANCER (Online Support Group)

Unexpected feelings and reactions can emerge at the end of treatment. These will be discussed along with strategies for managing during this time.This group is open to the community.

Day/Date - Tuesdays / Apr 7, Oct 6

Time - 12:30–1:30 PM

Registration required: To register/learn more, please contact: www.mskcc.org/vp


AN ORIENTATION TO LIFE AFTER CANCER – ONLINE PROGRAM (Lecture)

Kimarie Knowles, LCSW, Kristie Redfield, LCSW and Leah Moroge, LCSW, Department of Social Work

This lecture will review common emotional and practical concerns that can come up

when treatment is over. Both patients and caregivers are welcome to join.

Day/Date/Time

Tuesday / Jan 14, 1:00–2:15 PM

Thursday / Jul 16, 2:30–3:45 PM 

Registration required: To register, go to: www.mskcc.org/vp 


DATING AND DISCLOSURE (Online and In-Person)

Kimarie Knowles, LCSW, Kristie Redfield, LCSW and Leah Moroge, LCSW, Department of Social Work

After treatment ends it can be hard to know when, how and whether to disclose your cancer history. This program will focus on the complexities of dating after treatment. Must register: call 646-888-7106 or e-mail RLAC@mskcc.org 

Date/Time/Location/Room

Feb 11 / 12:00-1:00 PM (Online) To register go to: www.mskcc.org/vp 

Jun 16 / Aug 11 5:30-7:00 PM (In-Person) 160 East 53rdStreet 11th Fl. Conf Rm


DATING AND DISCLOSURE FOR YOUNG ADULTS (Online Program)

Kimarie Knowles, LCSW, Kristie Redfield, LCSW and Leah Moroge, LCSW,

Department of Social Work

It can be hard to know when, how and whether to disclose your cancer history. This program will focus on the complexities of dating after treatment for young adults.

Day/Date/Time - Tuesday / Nov 17, 12:30-1:30 PM 

Registration Required: To register, go to: www.mskcc.org/vp


EMBODIED: COPING WITH CANCER-RELATED BODY IMAGE CHANGES (Online and In-Person)

Rachael Goldberg, LCSW, Liz Fortier, LCSW and Meredith Cammarata, LCSW, Department of Social Work

This program will cover common body image concerns for individuals who have completed treatment for cancer. It will review how physical changes after treatment can impact one’s sense of self.

Consultation is necessary; call 646-888-8106

Date/Time/Location/Room

Mar 4 / 2:00–3:30 PM  (Online) To register, go to www.mskcc.org/vp

Jun 3 / 5:30–7:00 PM 430 E 67th St. RRL B22

Sep 16 / 2:00–3:30 PM Online  To register, go to www.mskcc.org/vp

Dec 2 / 5:30–7:00 PM  430 E 67th St. RRL 102






CONTACT INFORMATION ON THIS SCREEN MAY NOT BE USED FOR ANY COMMERCIAL PURPOSE

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MSKCC cont'd

LECTURES:

CHANGES IN WEIGHT (Online Program)

Cara Anselmo, MS, RD, CDN, Department of Nutrition

Many people experience unintentional changes in body weight during and after cancer treatment. This lecture will address how individuals can manage weight gain or weight loss with diet and nutrition.

Day/Date - Tuesday, Jan 28

Time - 1:00–2:30 PM

Registration required: To register, go to: www.mskcc.org/vp


RETURNING TO WORK (Online Program)

Nicole Jarvis, LMSW, Senior Manager of Programs, Cancer and Careers

This lecture will cover practical concerns that may arise when dealing with cancer in the workplace. Whether you are looking for a new job after treatment or needing additional accommodations, this session will provide information to help you take your next steps.

Day/Date - Tuesday, Feb 11

Time - 5:30–7:00 PM

Registration Required: To register, go to: www.mskcc.org/vp


MEDICAL DEBT

Vivienne Duncan, Esq., Director, Cancer Advocacy and Elderlaw Projects/City Bar Justice Center

This lecture will focus on the rights of patients with medical debt. A lawyer will offer advice on how to negotiate with hospitals and doctors. There will be a review of the Debt Protection Law, which helps patients who have medical bills in collection.

Day/Date - Tuesday, Feb 18

Time - 5:30-7:00 PM 

Location - 430 E 67th Street, Room RRL103 To register, e-mail RLAC@mskcc.org or call 646-888-8106


HOW MINDFULNESS CAN HELP WITH ANXIETY AFTER A CANCER DIAGNOSIS

Beth Sandweiss, MSW, Mind-Body Therapist

People who have been treated for cancer often experience ongoing worry, anxiety, and fears of recurrence. In this lecture, we will review the research and teach brief mindfulness practices that can be used to interrupt cycles of anxiety and worry. 

Day/Date - Tuesday, Mar 31

Time - 5:30-7:00 PM

Location - 430 E 67th Street, Room RRL 117 To register, e-mail RLAC@mskcc.org or call 646-888-8106


TRAUMATIC STRESS AND RECOVERY AFTER CANCER (Online Program)

Leah Moroge, LCSW and Kristie Redfield, LCSW, Department of Social Work

The experience of cancer treatment can be traumatic. This lecture will focus on traumatic stress and will explore strategies for coping and recovery.

Day/Date - Tuesday, Sep 15

Time - 5:30–7:00 PM

Registration required: To register go to: www.mskcc.org/vp


BENEFITS OF EXERCISE

Sarah Lehman, MA and Kurtis Stoeckel, BS, Exercise Oncology Research Program

This lecture will focus on the benefits of exercise before, during and after treatment and suggest ways to implement it into your life.

Day/Date - Tuesday, Oct 13

Time - 5:30–7:00 PM

Location: 430 E 67th Street, Room RRL B20 To register, e-mail RLAC@mskcc.org or call 646-888-8106


MEDICARE OVERVIEW

Vivienne Duncan, Esq., Director, Cancer Advocacy & Elderlaw Projects/City Bar Justice Center

This lecture will provide an overview of Medicare options including Part A, Part B, Part D, supplemental policies and guidance on appealing coverage denials.

Day/Date - Tuesday, Oct 27

Time - 5:30-7:00 PM

Location - 430 E 67th Street, Room RRL 117 To register, e-mail RLAC@mskcc.org or call 646-888-8106

LONG ISLAND

Ostomy Association of Long Island/Nassau

Contact: Angela McGrade: 516-883-9384

liostomatesgroup@gmail.com

If you plan to attend a meeting please contact Angela McGrade in advance.

Location: Long Island Jewish Hospital,

Administration Building (Basement Cafeteria)

400 Lakeville Road, New Hyde Park, NY

Meets 3rd Wednesday of each month at 7:30 PM except Dec-Feb and Jul-Aug


South Shore Ostomy Support Group 

Mercy Medical Center, 1000 North Village Ave, Rockville Centre, NY.

Meets 2nd Wednesday of each month at 7:30 PM except Dec-Feb and Jul-Aug 

For information or to RSVP to attend a meeting please contact:

Lois Dunwoody: 516-536-8119, 

Support Group Leader

LOWER HUDSON VALLEY

Westchester

Sleepy Hollow, NY

914-699-8476

jk3lly01@gmail.com

Jean Kelly


Mid-Hudson Valley Ostomy Support Group 

Poughkeepsie, New York

Vassar Brothers Hospital, 45 Reade Place

Meets 2nd Thursday of each month @ 6:30 PM except January and August

Contact: Paulette Reda 845-297-0587

Website: https://www.ostomy.org/mid-hudson-valley-ny-ostomy-support 


Rockland County Ostomy Support Group Meetings are held at Good Samaritan Hospital 255 Lafayette Ave, Suffern, NY 10901  Group meets 4x/year: meeting dates to come. No RSVP required. Please stop at front desk to confirm meeting room. Contact: Debra Siddi, WOCN Tel: 845-641-7447 debrnet@aol.com



OTHER VIRTUAL SUPPORT

J-Pouch Group 

A support site dedicated to the Ileo-anal anastomosis, or "J-Pouch" operation.

https://www.j-pouch.org/


Pull-Thru Network Inc.

Lori Parker, Executive Director

309-262-0786

email: pullthrunetwork@gmail.com

https://www.pullthrunetwork.org/

Pull-thru Network, Inc. is a volunteer-based non-profit organization dedicated to providing information, education, support and advocacy for families, children, teens and adults who are living with the challenges of congenital anorectal, colorectal, and/or urogenital disorders and any of the associated diagnoses.


Quality Life Association

The Quality Life Association is a non-profit nationwide association aimed at meeting the special needs of the continent ostomate and to educate others on the latest advances in ostomy options.

For Support Groups in Other Areas, go to: https://www.ostomy.org/support-group-finder/