ostomy / diversion support groups (in-person & virtual)

NEW YORK CITY

BROOKLYN OSTOMY SUPPORT GROUP

Meeting location:

Maimonides Medical Center, 4802 Tenth Ave, Brooklyn, NY 11219

Conference Room 2C, 2nd Floor,

Administration Building


Our meetings are free and open to the public, no RSVP is required. Individuals who want to attend and/or have questions, please contact the Wound Ostomy Nursing Specialist Team at 718-283-7954. 


WOCN team: Karine Arzoumanov; Monica Cabrera, Anjelika Kuvaldina and Sau Man 'Christine' Pang, MSN, RN, CWOCN, Wound Ostomy Continence Nursing Team Coordinator


We meet on last Wednesday of the month in April, May, June, September, October, and November. 

Remaining 2019 meeting dates/times:

June 26th from 3:30 pm - 5 pm;

Sept 25th from 1 pm - 3 pm;

Oct 24th from 3 pm - 5 pm;

Nov 26th from 1 pm - 3 pm.



SELECTED MEMORIAL SLOAN KETTERING CANCER CENTER SUPPORT & EDUCATION RESOURCES

MSKCC offers a variety of seminars, support group meetings, workshops and other programs focusing on living beyond cancer. Below are some selected offerings that may be of particular interest to the Ostomy Association of New York meeting attendees and visitors to the OANY website. To view other offerings, visit: https://www.mskcc.org/experience/patient-support/counseling/support-groups-programs/virtual-programs or

https://www.mskcc.org/experience/living-beyond-cancer/services-survivors 

Please note that the requirements for participation vary; some programs are open to non-MSKCC patients, others are not.


Bladder Cancer Support (In-Person)

This program is for people who have been treated for cancer. No observers, please, without prior approval. With Linda Mathew, LCSW, Mallory Bowker, RN or Vashti Livingston, CWOCN

Day/Date/Time: Thursdays: July 11th; August 8th; September 12th; October 10th; November 14th; December 12th, 2019.

Time: 12:00 -1:30 PM.

Location: MSKCC Rockefeller Research Laboratories, 430 East 67th St. Room: May - August: RRL 103; Sept: RRL B22;

Oct - Dec: RRL 103

You must register to attend this program. To register & for more information, call 646-888-8106 or

e-mail RLAC@mskcc.org 


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MSKCC cont'd

Bladder Cancer Support (Online)

This live online support and education group is for individuals undergoing treatment for bladder cancer. The group is open to MSK and non-MSK patients; Discussions led by social worker and a nurse.

Day/Date/Time: Thursdays: July 25; Aug. 22; Sept 26; Oct 24; Nov 28; December 26th, 2019.

Time: 4:00-5:00 pm.

Registration is required. To register/learn more, contact virtualprograms@mskcc.org 


Ostomy Support Group for Patients with Colorectal Cancer (Online)

This live online support & education group is for people undergoing treatment for colorectal cancer with an ostomy. Group is held every other month on the 3rd Thursday of the month. Open to everyone. Led by social worker and a nurse.

Day/Date/Time: July 18th; Sept. 19th; Nov. 21st, 2019

Time: 4:00 – 5:00 PM

Registration is required. To register/learn more, please contact virtualprograms@mskcc.org 


Colorectal Cancer Support Group: (In-Person)

Support & discussion for men and women who have completed treatment for colorectal cancer. Topics include diet & nutrition, adjusting to physical changes and managing anxiety. Program for people who have had cancer. No observers without prior approval.

Date/Time/Location: Tuesdays: Aug. 20st; Oct. 15th; Dec. 17th 2019. Time: 1-2:30 PM

MSKCC Rockefeller Outpatient Pavilion

160 East 53rd Street (At Third Avenue)11th Floor Conference Rm 

Registration is required. To register/learn more, call 646-888-8106 or e-mail: RLAC@mskcc.org 


Dating and Disclosure

(In-Person, 1 online session) For people who have had cancer; no observers without prior approval

Tuesdays, Aug 13th, 5:30-7:00 PM

Rockefeller Outpatient Pavilion,

160 East 53rd Street (At Third Ave.); 11th Floor Conference Room

Registration required: to register/learn more call 646-888-8106 or e-mail RLAC@mskcc.org 


Men and Cancer Support Group: (Online) For men who are finished with treatment. Must be patients at MSKCC and must have access to computer and a telephone

Wednesdays: July 24, October 23, 2019; Time: 2:30-3:30 PM

Registration required: To register/learn more, contact virtualprograms@mskcc.org

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MSKCC cont'd

An Orientation to Life After Cancer: (Online)

Talk will review common emotional and practical concerns that can arise when treatment is over. Discuss ways to manage the return to everyday life. Patients and caregivers are welcome to join

Speakers: Kimarie Knowles, LCSW, Kristie Redfield, LCSW,

Leah Moroge, LCSW

Date/Time: Tuesday, July 30, 2019; 1:00 PM

Registration Required: To register/learn more, please contact: virtualprograms@mskcc.org


Coping with Fears of Recurrence: (Online)

It is normal to experience anxiety or fear of occurrence after completion of treatment for cancer. Feelings can range from “scananxiety/anxiety” concerning follow-up appointments and tests, to worries that may impact your day-to-day quality of life. Presentation and interactive discussion concerns how to understand and best cope with these feelings. Speaker:

Natalie Ishak Santos, LCSW.

Date/Time: Tuesday, August 6, 2019, 1:00-2:30 PM

Registration Required: To learn more, please e-mail: virtualprograms@mskcc.org



WEILL CORNELL MEDICAL CENTER

SUPPORT GROUP

Date: Held on the second Tuesday of each month

Time: 5:30 p.m. - 6:30 p.m.

Location: 1315 York Avenue (at E. 70th Street), first floor

The Jay Monahan Center for Gastrointestinal Health 

Registration Required: No


This group is free and open to the public, and focuses on living life with an ostomy. The CADC ostomy support group is directed by Karen Keaney, MSN, RN, FNP-BC, CWOCN.

No RSVP is required.


Please join our ostomy email list to receive updates & reminders for this support group.

LOWER HUDSON VALLEY

Westchester

Sleepy Hollow, NY

914-699-8476

jk3lly01@gmail.com

Jean Kelly


Mid-Hudson Valley Ostomy Support Group

Poughkeepsie, New York

Vassar Brothers Hospital, 45 Reade Place

Meets 2nd Thursday of every month @ 6:30 PM (Exceptions: January, August)

Contact: Paulette Reda 845-297-0587

Website: https://www.ostomy.org/mid-hudson-valley-ny-ostomy-support 


Rockland County Ostomy Support Group
Meetings are held at Good Samaritan Hospital
255 Lafayette Ave, Suffern, NY 10901

Group meets 4x/year: remaining 2019 meetings:
June 5th, September 11th, and November 13th.
No RSVP required. Please stop at front desk to confirm meeting room.
Contact: Debra Siddi, WOCN
Tel: 845-641-7447
debrnet@aol.com

LONG ISLAND

Ostomy Association of Long Island/Nassau

Contact: Angela McGrade: 516-883-9384

liostomatesgroup@gmail.com

If you plan to attend a meeting please contact Angela McGrade in advance.

Location: Long Island Jewish Hospital,

Administration Building (Basement Cafeteria)

400 Lakeville Road, New Hyde Park, NY

Meets 3rd Wednesday of each month at 7:30pm except December, January, February, July, August


South Shore Ostomy Support Group 

Mercy Medical Center, 1000 North Village Ave, Rockville Centre, NY.

Meets 2nd Wednesday of every month at 7:30 pm, 

Does not meet July-August and December-February 

If you plan to attend, please Contact Lois Dunwoody to RSVP.

For more information contact:

Lois Dunwoody: 516-536-8119, 

Support Group Leader


CONTACT INFORMATION ON THIS SCREEN MAY NOT BE USED FOR ANY COMMERCIAL PURPOSE

OTHER VIRTUAL SUPPORT

J-Pouch Group 

A support site dedicated to the Ileo-anal anastomosis, or "J-Pouch" operation.

https://www.j-pouch.org/


Pull-Thru Network Inc.

Lori Parker, Executive Director

309-262-0786

email: pullthrunetwork@gmail.com

https://www.pullthrunetwork.org/

Pull-thru Network, Inc. is a volunteer-based non-profit organization dedicated to providing information, education, support and advocacy for families, children, teens and adults who are living with the challenges of congenital anorectal, colorectal, and/or urogenital disorders and any of the associated diagnoses.


Quality Life Association

The Quality Life Association is a non-profit nationwide association aimed at meeting the special needs of the continent ostomate and to educate others on the latest advances in ostomy options.

For Support Groups in Other Areas, go to: https://www.ostomy.org/support-group-finder/